Archive for the ‘Terminally Ill Children’s Fund’ Category

Terminally Ill Children’s Fund meets Karen

October 10th, 2013 by Brian Maiorana

Good Charity Inc and it’s Terminally Ill Children’s Fund recently visited with Karen, a parent coping with her daughter’s rare disorder that causes bleeding from the eyes for unknown reasons. Karen and other parents like her receive direct financial assistance from local organizations that we support.

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In New Jersey, Good Charity, Inc. and the Terminally Ill Children’s Fund met Jen and her profoundly disabled son Evan.
Evan is severely autistic and has Down’s Syndrome. He doesn’t know when he’s hungry or if he’s hurt.
People like Jen and Evan receive direct financial support through organization that we support with your donations.

 

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Terminally Ill Children’s Fund in New Jersey with Liz

October 10th, 2013 by Brian Maiorana

Good Charity Inc and it’s Terminally Ill Children’s Fund recently visited with Liz, a parent coping with her son’s rare disease, Burkitt’s lymphoma. Liz and other parents like her receive direct financial assistance from local organizations that we support.

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[jwplayer mediaid=”1414″]Good Charity Inc and the Terminally Ill Children's fund support Jason's Dreams for Kids in New Jersey

In April of 2013, Good Charity, Inc and the Terminally Ill Children’s Fund director  Brian Maiorana went to New Jersey to visit Jason’s Dreams for Kids.

Jason’s Dreams for Kids, Inc. is an organization that was founded in memory of Jason Douglas Creager, who passed away on January 18, 1992 after losing his battle with cancer.

Jason’s Dreams for Kids, Inc. is devoted to granting wishes to children diagnosed with life-threatening illnesses. Bringing a little happiness and putting a few smiles on these children’s faces – and hopefully their parents faces – is their goal. Jason’s Dreams for Kids is also subsidized by founder Dennis McGinnis’ own company – McGinnis Printing, which covers incidental expenses such as printing, mailing and administrative costs.

We appreciated the opportunity to meet with Dennis and the families that he has touched.  It was truly a heart warming experience.

The Terminally Ill Children’s Fund is committed to working with partners like Jason’s Dreams for Kids and will continue to support them and the great work they do!!

 

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[jwplayer mediaid=”1428″]

Terminally Ill Children’s Fund and Good Charity Inc director Brian Maiorana recently visited a great charity in New York that helps Terminally Ill Children and their families.

FofK

From the Friends of Karen Website

Mission

Friends of Karen’s mission is to provide emotional, financial and advocacy support for children with a life-threatening illness and their families, in order to help keep them stable, functioning and able to cope.Since our founding in 1978, we have served approximately 5,000 children and their families. When siblings are counted we have touched the lives of over 12,400 children.Friends of Karen offers its services regardless of race, religion, gender, handicap or national origin in compliance with all applicable federal, state and local laws and regulations.

Friends of Karen operates in accordance with its core values:

COMPASSION:  We were founded out of the kindness of one friend toward another.  We are inspired by that same spirit of compassion, striving to bring hope into the lives of our children and their families who are struggling with life-threatening illnesses.

DEDICATION:  Our dedication to the well-being of our children and families is unwavering and enduring.

RESPECT:  We respect each other’s roles, expertise and experience, and support each other professionally.

We treat all people and especially each other with dignity and consideration.

We acknowledge with gratitude the critical role of our Board of Directors, our volunteers, our donors and our communities as they embrace our mission and enable our work.

INTEGRITY:  We hold ourselves to the highest ethical standards and recognize the importance of confidentiality and discretion in everything we do.

We strive to provide our services and allocate our resources in a fair and impartial manner.

IMPACT:  We are motivated by the immediate and tangible nature of our work.  We operate with energy, determination and passion, never compromising our responsibility to have a meaningful impact on the lives of our children and families.

Good Charity, Inc

 

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JeffersonAt Good Charity Inc. we often use our funds to appropriate money to individuals in dire need through our Financial Assistance Program. However, we also aim to provide funds to charities who can do the same on our behalf.

We recently donated $2,500 to The Pinwheel Project, a charity devoted to providing comfort and support for hospitalized children and their families at no cost. Their mission is a compelling one:

We are dedicated to the idea that children and families affected by a pediatric hospital stay deserve an extra measure of comfort and kindness. Our commitment is to promote healing by providing practical assistance, emotional support and a reason to smile during this difficult time.

Just recently I was delighted to receive an email from Sandee Martensen — the Executive Director of The Pinwheel Project — in which she shared a number of touching stories. I’ve shared two of them below.

Hector

The first story was of Hector — an eighteen-year-old dialysis patient. He had a special request that was forwarded to Sandee by his physician:

I am writing to you on behalf of dialysis patient of mine, now 18 years old, who would like to attend his High School prom.

Hector was followed by a Nephrologist and in 2001 was diagnosed with FSGS, which is a syndrome that attacks the kidney. He first was on Peritoneal Dialysis and most recently Hemodialysis Dialysis. This process occurs three times a week for a duration of 3½ hours.

He has struggled to maintain his schoolwork, stay connected to his family and friends and enjoy life. His family experienced more hardship when Hector’s dad died of a heart attack on a family vacation. His mother then became emotionally unstable and could no longer care for Hector. His elderly Aunt tried to raise him, but was struggling with aging herself. So he was then placed on social hold in the hospital for almost a year, until there was a foster family space available. After three years with this Foster Family he recently moved to another Foster Care Family.

Hector is an easy going, simple guy who would like to finish his high schools years just like every other Senior, take his regents, attend prom and proudly graduate.

I am delighted to say that The Pinwheel Project — with Good Charity’s financial assistance — is sending Hector to his high school prom with all expenses covered.

Jefferson

I received an equally heartwarming story from Sandee about a five-year-old leukemia patient, Jefferson, whose treatment requires a series of admissions of four weeks in the hospital and four weeks at home:

When Jefferson is inpatient The Pinwheel Project is happy to send him lots of Toy Story toys including his #1 character, Buzz Lightyear. We are also able to send his favorite snacks to the hospital. When Jefferson is home and between treatments, he is unfortunately confined to the house, so we have been sending packages of toys, activities and goodies to his home. We’re told that he loves the special packages and looks forward to getting them.

It is wonderful to know that the donations provided to us here at Good Charity can be used to increase the quality of life of young people afflicted by illness. That is the purpose of our Terminally Ill Children’s Fund and we are delighted to see that The Pinwheel Project has used our donation in such a conscientious manner.

If you would like to contribute then please do not hesitate to get in touch.

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Terminally Ill Children's Fund at work in Long Island, New York

Bringing life into this world is a miracle in itself and one of the happiest moments a parent could ever experience. The anticipation and joy can be tremendous.Most families shortly after giving birth bring their newborn baby home to raise and love. Others, however, receive news that no one could prepare for. I could not imagine a more terrifying experience than learning your baby has health complications or an illness that threatens their life. The feeling of desperation and sadness must be overwhelming…

Good Charity Inc supports the Muir family through their Financial Assistance program.
Good Charity Inc also supports The Autistic Society Fund, America’s Missing Children Fund, Terminally Ill Children’s Fund, Children’s Leukemia of America Fund, Disabled and Paralyzed Veterans Fund, National Breast Cancer Awareness Fund, Michigan Disabled and Paralyzed Veterans Fund, Disabled Veterans Wheelchair Games, Disaster Relief Aid Fund

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Osteosarcoma is a big word with a scary meaning. It is a form of bone cancer, and, unfortunately, there is a 15 year old kid named Deontae in Michigan that has osteosarcoma. When Terminally Ill Children’s Fund director Brian Maiorana heard about him through our friends at “The Rainbow Connection” in Rochester, Michigan, we decided to help.

Good Charity, Inc helps Terminally Ill ChildrenIn and out of the hospital since being diagnosed with cancer early last year, his favorite class in high school is history-but his real passion are video games. So “The Rainbow Connection” and the Terminally Ill Children’s Fund decided to give Deontae a shopping spree where he could forget about being sick and concentrate on having fun.

The day started when a limousine picked he and his family up; next stop-anywhere Deontae wanted to go! Turned out he wanted to go shopping, so the limo took him to buy a video game system, a flat screen tv, some trendy new threads, DVD’s, and, of course, a slew of games to play on his new video game system. Then the day ended with he and his family eating at his favorite restaurant.

This February, Good Charity, Inc. received a beautiful plaque from The Rainbow Connection to commemorate Deontae’s big day.

“Your generosity has made a huge difference to Deontae and his family and to us. Your compassion and support will not be forgotten”                                                                                                                                                                    -Mary McCarter                                                                                                                                                                                         Executive Director, The Rainbow Connection

Terminally Ill Children’s Fund is proud to have helped Deontae have a special day, and we appreciate the amazing work and dedication from The Rainbow Connection.

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Terminally Ill Children’s Fund helps Kids be Kids Again!

January 30th, 2013 by Brian Maiorana

Over 27,000 kids are diagnosed every year with life threatening illnesses. From the day they receive their diagnosis until the end of their struggle, everyday is a fight for life, and this fight takes a toll on not just their body, but their spirits. Terminally Ill Children’s Fund and its director Brian Maiorana wanted to find a way to help in whatever small way we could, and eventually we found an organization in Ohio called “A Kid Again” that is doing amazing work with terminally ill children.

Good Charity Inc helps Terminally Ill Children

“Where a child with a life threatening illness is…A Kid Again!”

The motto of the organization perfectly sums up what they do. To date, they have helped over 1,600 families through three programs:

  • Family Adventures
  • Hospital Visitation
  • Parent’s Night Out

Family adventures  offer  children, siblings and parents a cost free occasion to enjoy quality time together and to create lasting memories. Hospital visitation provides a cadre of volunteers (bearing toys and activities, of course!) to children confined to a hospital room. Parent’s Night Out offers a brief respite from the emotional and physical stresses of dealing with a terminally ill child by providing childcare and planned activities for parents.

The Terminally Ill Children’s Fund and director Brian Maiorana are proud to financially support “A Kid Again” as it serves terminally ill children and their families all across the great state of Ohio.

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Coping with a terminal illness is one life’s greatest challenges. When there are kids involved, it becomes even more heartbreaking, and frightening. When Brian Maiorana, the director of Good Charity, Inc., found out about a group called “Friends of Karen’s” in New York, we knew that the Terminally Ill Children’s Fund had to help out financially.

Good-Charity-Inc-helps-the-Friends-of-Karen-and-terminally-ill-children

Friends of Karen has been around for over 30 years (since 1978), and has helped almost five thousand(!) children and their families.  Their dedication to the well-being of terminally-ill children and families is “unwavering and enduring.”

The organization provides tangible financial support like covering families’ mortgage payments and utility bills when their responsibilities in caring for their sick child has left them unable to work. They pay for childcare for the sick child’s siblings, and even help cover medical expenses.

Friends of Karen also works with professional social workers to provide advocacy for families and kids to help them navigate the complexities of the medical bureaucracy.

Good Charity Inc supports Friends of Karen

Working with terminally-ill children and their families is one of the most difficult jobs around, but Friends of Karen in New York has been doing it for 35 years.  The Terminally Ill Children’s Fund is proud to financially support “Friends of Karen” and the work they do to support and advocate for terminally-ill kids as well as their families.

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