Children’s Leukemia of America Fund | Learning about Late Effects

April 26th, 2013 by Brian Maiorana

Late Effects of Leukemia Treatment -Methotrexate

Adam was 2 years old when he was diagnosed with acute lymphoblastic leukemia. Adam’s parents desperately brought him into St. Louis Children’s Hospital, where he received world-class care.  A course of chemotherapy and therapeutic drugs were scheduled for him. It took over 2 years of treatment, but by the time kindergarten was  ready to start, Adam was in remission and his parents sent him happily off to school. But then his mother noticed something strange.

Children's Leukemia of America Fund

As a result of some of the medications Adam took while undergoing chemotherapy, chiefly Methotrexate, his memory and concentration were impaired.  While his Leukemia was cured, Adam suffered from a little publicized, but very important set of issues called late effects. This video explores the causes behind late effects, which Adam said makes it “….feel like my mind is being erased.”

Occupational Therapy – Modulated Music

Adam’s occupational therapist and his mother discuss the causes, symptoms, and therapies for these late effects; things many parents may not be aware of and should be on the lookout for. Modulated Music and other forms of therapy have helped Adam regain his lost capacities and now his future looks bright!

-Brian J. Maiorana, director, Good Charity Inc.

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